Tag: "Down Syndrome"

Happy 54th Birthday, Ralph!

Happy 54th Birthday, Ralph!

| October 4, 2013 | Comments (0)

I have a very special, amazing and inspiring brother, appropriately named Raphael (although we call him Ralph) after our maternal grandfather and the Archangel of Healing. To readers of my blog and everyone who knows him in real life, Ralph’s story is a heart-warmer. I first wrote about it for a local paper, The Happy [...]

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Happy Mother's Day!

Happy Mother’s Day!

| May 12, 2013 | Comments (0)

I’ve been blessed in many ways but none as important as being raised by one strong, loving, generous, independent, intelligent and caring mother whose presence continues to enhance my life today. Some believe that our souls choose our parents and all of the┬ácircumstances of our lives prior to our birth; others believe it’s all up [...]

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The Best and Worst of Times

The Best and Worst of Times

| August 14, 2012 | Comments (1)

In light of what I am about to post, the petty comments from two readers (or perhaps it’s just one person who keeps using different emails) are even more childish and immature. You know who you are — and no, I will not post your ill-informed remarks on my blog. You are welcome to stop [...]

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"Disenfranchised" Have No Problem Producing Photo ID at Casinos

“Disenfranchised” Have No Problem Producing Photo ID at Casinos

| July 16, 2012 | Comments (0)

So why can’t they produce one to exercise the sacred privilege of voting? Oh right, they can but it’s useful propaganda for the left to perpetuate the cult of victimhood and promote the false narrative of the GOP and conservatives as “racist” in order to serve their own power-hungry objectives. Although I’m not a gambler, [...]

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A Night At The Sleep Clinic

A Night At The Sleep Clinic

| July 11, 2012 | Comments (0)

Last night, we finally got around to actually going to the sleep clinic for Ralph’s sleep test — a feat not easily pulled off. The night of our original appointment last month, he got so upset when it was time to go that he actually ran away, igniting a one-hour search effort involving my sister [...]

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Sleep Apnea Possibly to Blame for Ralph's Memory Problems

Sleep Apnea Possibly to Blame for Ralph’s Memory Problems

| June 13, 2012 | Comments (0)

It’s been a little crazy around here lately and in all of the flurry of activity I haven’t had time to post an update about Ralph until today. Thankfully I have good news to report! Last Friday I accompanied him to Bryn Mawr for his scheduled MRI. Although it was a “closed MRI”, for a [...]

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Saturday Fun

Saturday Fun

| June 2, 2012 | Comments (0)

I will be busy most of the day in preparation (finally!) for something fun, uplifting and celebratory although I am not at liberty to post the details just yet. Anyway, I am also thrilled to report a positive update on Ralph who is already responding well to the medication Dr. Reid prescribed for him the [...]

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An Update on Ralph

An Update on Ralph

| May 30, 2012 | Comments (3)

Yesterday we took Ralph to see a neurologist, a wonderful man by the name of Dr. Chris Reid who’d been referred to us by an internist who works almost exclusively with special needs patients. Although we put on a brave show for my brother, my mother and I were both very anxious on the drive [...]

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Down Days

Down Days

| May 21, 2012 | Comments (13)

In my blog post Good News For Ralph, I expressed my relief that easily rectified vitamin deficiencies were the cause of his mental confusion and strange behavior. Seems that might have been overly optimistic. Although I haven’t written extensively about it, over the past several weeks the disturbing behavioral patterns have intensified after what appeared [...]

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Chapter Four -- Sea To Shining Sea

Chapter Four — Sea To Shining Sea

| April 25, 2012 | Comments (0)

In this next chapter, Ken informs his concerned mother about Madeline’s pregnancy, the possibility of one or both of the babies having Down syndrome and her harrowing visit with Dr. Harper. In one touching scene, readers are reminded of the close bond Ken shares with his ever-supportive mother as well as a fond memory of [...]

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Saturday Meditation: Standing Outside The Fire

Saturday Meditation: Standing Outside The Fire

| April 21, 2012 | Comments (0)

This Garth Brooks classic has always been one of my favorites, not just for its inspiring message but also for its accompanying video featuring a determined young man with Down syndrome who refuses to be placed in a box. It definitely hits home and as many times as I’ve seen it, I still get choked [...]

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Midweek Meditation: Honoring The Ties That Bind

Midweek Meditation: Honoring The Ties That Bind

| April 18, 2012 | Comments (0)

In honor of my mom’s upcoming birthday on April 19, I thought I’d use the opportunity to reflect on the gift of a good family and a strong upbringing for this week’s meditation. It’s a gift I often took for granted growing up, but as I’ve matured and met various people along the way who’ve [...]

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Chapter Three - Sea To Shining Sea

Chapter Three – Sea To Shining Sea

| April 12, 2012 | Comments (1)

So I’ve decided to share Chapter Three of my sequel to provide a better understanding of where the story is heading, in the hope of receiving feedback from my blog readers. Obviously, the themes contained within this second novel delve much more deeply into current events, politics and culture. Whereas Water Signs’ weaved cultural commentary, [...]

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Good News for Ralph

Good News for Ralph

| February 23, 2012 | Comments (3)

In A Father’s Tears, I shared the emotionally charged moment I experienced with my father over very real concerns about my brother Ralph’s health as we awaited the results of his recent bloodwork. It’s not often you find yourself praying for abnormal results, but in this case given all of the possible scenarios the very [...]

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